rareadventure

To mother:

With Kasper’s third birthday rapidly approaching, I can’t help but look back over the last three years and everything that has happened. I got thinking about what it means to not only be a mother but a mother to a rare child and, in fact, what mothering means to me. To mother: verb To mother …

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D Day

“How did this happen?” we asked. The geneticist calmly explained how genetic mutations occur. “My wife keeps telling herself that she somehow caused his disabilities”, my husband said. The doctor looked me in the eye and said “no, you could not possibly have caused your son’s rare genetic syndrome”. Hearing these words was like someone …

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