Long silky ears stood to attention in the tall icy grass. I watched as the hare glided back and forth through the lush frozen garden. I daren’t move a muscle for fear of scaring it away. Woodpeckers pecking away and lambs bleating were the only sounds I could hear. There was no manmade sound in …
Five pairs of eyes all gawked intensely at my son who gazed around completely oblivious. In their owner’s hands lay clipboards and pens. Their masked faces only highlighted their stares. I sat holding my son, silently wishing my husband could be by my side in what felt like an ever-shrinking examination room. The claustrophobia was …
Before reading this, please know that I am aware that I am writing this from a position of privilege. I know that not everyone is able to go on holiday for various reasons and they may not have a partner. I also acknowledge that my son is not medically complex. This is just one perspective …
A guide to getting needs met (by somone who is still learning) Read More »
“When my rare son was born my world expanded”. These words swirled through my mind as I stood with the winter sun on my face and looked out over Lake Geneva towards the Alps. I thought back to when my son was born and nothing could have been further from the truth for me. I …
How often have we heard these comments about our children: “He’ll catch up” (he won’t) “He’ll get there” (get where?) “Boys are just lazy” (my child is disabled, not lazy) “At least he’s alive” (my least favourite so far) Or perhaps a version of one of these: “You’re so strong” (so, why do I feel …
