With Kasper’s third birthday rapidly approaching, I can’t help but look back over the last three years and everything that has happened. I got thinking about what it means to not only be a mother but a mother to a rare child and, in fact, what mothering means to me. To mother: verb To mother …
Before reading this, please know that I am aware that I am writing this from a position of privilege. I know that not everyone is able to go on holiday for various reasons and they may not have a partner. I also acknowledge that my son is not medically complex. This is just one perspective …
A guide to getting needs met (by somone who is still learning) Read More »
“When my rare son was born my world expanded”. These words swirled through my mind as I stood with the winter sun on my face and looked out over Lake Geneva towards the Alps. I thought back to when my son was born and nothing could have been further from the truth for me. I …
