I’ll never forget the words “The EEG shows your son has infantile spasms” but what came after is blurry. I remember crying but not feeling sure why. I had never heard of this before. I understood that the neurologist was telling me my son had epilepsy. Plenty of people have epilepsy, right? They live typical …
How often have we heard these comments about our children: “He’ll catch up” (he won’t) “He’ll get there” (get where?) “Boys are just lazy” (my child is disabled, not lazy) “At least he’s alive” (my least favourite so far) Or perhaps a version of one of these: “You’re so strong” (so, why do I feel …
Does anyone? I thought to myself. “No”, I said out loud. How could I explain to the therapist opposite me that I felt like all my mum friends had received a manual on how to raise their child and I seemed to have been overlooked. I saw friends go to wine festivals, restaurants and the …
At the ripe old age of 32, I have realised that, for me, New Year is not about making resolutions or trying to become a new person but it is a time to reflect back on the year: the highs and the lows. At the stroke of midnight December 31st 2021 everyone in my house …
